Saturday, June 12, 2010
A reminder
Some of my friends and family that are so kind as to follow this blog may wonder why I include so many medical details at times. It does seem at bit much. Please remember that I not only keep this blog to share Elle's life with all of you, but I keep it for the parent who was just told that their child has Lissencephally, or Cataracts, or Hip displaysia...it's also for all the families that are thrown a curve ball like we were, for the families that don't know what end is up and they turn to the internet and search for other families that have gone through or are going through this. I did it...I searched endlessly for other families that had children with this horrible brain disorder and I found them !!! I found friends, I found hope, I found resources, I found answers, and I found a way to possibly help others who may now be in that same position. This is why I share as much as I do. If another family can see pictures of Elle and see the things that she CAN do, my hope it that they can focus on what their child CAN do vs. what they can not. If I can provide one Dr's name that can change the life for a child then this blog has served it's purpose. If a picture of Elle can make another family smile while they anticipate their own child being able to smile one day, this blog has served it purpose. If this blog can give hope to others that their child CAN do more...it's endless really.
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