Saturday, October 6, 2012

Saturday Daydreams

It's a lazy Saturday and I'm home with Elle who has just decided to grace me with her presence.  I love this kid.  She has been playing in her room all day and has just decided...at 4:59 p.m. to come out into the living room to see what she was missing.  She crawled over to the patio door and gazed out the glass panel. I walked over to raise the blinds a bit more for her and as  I said "Elle, do you see outside, do you want to go outside?" my thoughts began to roll....for a moment I imagined elle...outside and able to walk and run for the very first time. It would be fall...cool and crisp outside...and sunny.  She would have acres and acres to run across.  There would be fall leaves in piles for her so if she fell, they would catch her and the noise of the crumbling leaves would make her laugh.  She would get up and run and run and run until she could run no more and she would run back to me and collapse at me feet laughing hysterically and sharing that big elle smile.

Elle won't run today...but I will always have hope for the future.

Wednesday, October 3, 2012

Lions and Tigers and Bears...and Oh Yea...STINGRAYS!!

It's official...the Stingray has arrived....






  No...elle did not get a pet  but rather a new pediatric wheel chair...The Stingray.    The chair was long over do as elle had outgrown the Kimba, her previous chair. Yes, we call things by name around here..especially strollers seeing as elle has a plethora of them.  After living with the Kimba Spring for 3 1/2 years, I knew exactly what I wanted and didn't want in the next stroller.  Yes, I know...it's a wheelchair but I still refuse to call it that..hence..."stroller."


Elle has so much room and is so comfortable in it.  I absolutely love it.  It has a carbon fiber frame which makes it extremely light, the seat detaches from the frame allowing me to load it very easily into the SUV.  All adjustments are made with an allen wrench which makes minor adjustments at home both possible and easy. Nothing like having a random piece of the chair fall off and not having the ability to reattach it at home :-( 

Best of all...you can literally strip the seat down to the frame in less than 2 minutes, it's machine washable and dries surprisingly fast overnight. The chest harness and lateral plates are covered in a removable, neoprene cover that slip right off and also pop into the washing machine!!  Overall..it's a brilliant design. This should last little pee-wee for the next 4 years...hopefully.

As for the Kimba Spring....we made the decision to donate it to Wolfson Children's Hospital. We hope that it can bring a sense of independence to a child, to allow them to sit at the same level with others, to be able to go places they may not have been able to access and to go farther then their parents were able to physically carry them.